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This list was created by EDNARMI:LIST_create on Tue Dec 12 15:05:26 MST 2023 This list was created by EDNARMI:LIST_create on Tue Dec 12 15:05:26 MST 2023
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RES: VOTE: EBP Data sharing policy
Manuela da Silva
Wed, 9 Jul 2025 09:39:42 +0000
Reply
Dear All,

I vote Yes.
Best regards,
Manuela

[Marca Fiocruz]
MANUELA DA SILVA
Gerente Geral * General Manager
Biobanco da Biodiversidade e Saúde da Fiocruz * Fiocruz Biodiversity and Health Biobank<https://biobanco-bbs.fiocruz.br/pt-br>
Vice-Presidência de Pesquisa e Coleções Biológicas * Vice-Presidency of Research and Biological Collections * Fundação Oswaldo Cruz<https://portal.fiocruz.br/>
Currículo Lattes<https://lattes.cnpq.br/1048229426231783> * ORCID<https://orcid.org/0000-0001-6073-8929>
Tel.: +55 21 2088-3856

De: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> Em nome de Debra Mathews
Enviada em: segunda-feira, 7 de julho de 2025 13:04
Para: [log in to unmask]
Assunto: VOTE: EBP Data sharing policy
Prioridade: Alta

[More ...]
Reply
No Replies
VOTE: EBP Data sharing policy
Debra Mathews
Mon, 7 Jul 2025 16:04:23 +0000
Reply
Dear colleagues,

As discussed at the June meeting and reported in the meeting minutes, the draft EBP Data Sharing Policy<https://docs.google.com/document/d/1zPx_-JTxg_mOwxBuTviuL6I-RrHLoFTH/edit#heading=h.gjdgxs> is ready for a vote of this committee.

A vote of YES supports the current draft<https://docs.google.com/document/d/1zPx_-JTxg_mOwxBuTviuL6I-RrHLoFTH/edit#heading=h.gjdgxs> being sent to the Executive Council for review, with the suggestion that it should also go to a number of EBP projects for review, feedback, and potential alignment/harmonization with existing policies.

[More ...]
Reply
Show Replies 11 Replies
Re: VOTE: EBP Data sharing policy
Melissa Goldstein
Tue, 8 Jul 2025 17:52:48 -0400
I vote *YES*!

Thanks!

Melissa

Melissa M. Goldstein, J.D.
Professor | Department of Health Policy and Management
Milken Institute School of Public Health
The George Washington University
o 202-994-4235
[log in to unmask]

"Liberty and duty, freedom and responsibility. *That's the deal*." - John
W. Gardner

On Mon, Jul 7, 2025 at 12:04 PM Debra Mathews <
[log in to unmask]> wrote:

> Dear colleagues,
>
> As discussed at the June meeting and reported in the meeting minutes, the
> draft EBP Data Sharing Policy
> <https://docs.google.com/document/d/1zPx_-JTxg_mOwxBuTviuL6I-RrHLoFTH/edit#heading=h.gjdgxs> is
> ready for a vote of this committee.
>
> A vote of *YES* supports the current draft


[More ...]
Re: VOTE: EBP Data sharing policy
Joseph Yracheta
Tue, 8 Jul 2025 19:28:36 -0500
No abstract is available available for this message. [Read Message ...]
Re: VOTE: EBP Data sharing policy
Joseph Yracheta
Tue, 8 Jul 2025 19:41:47 -0500
No abstract is available available for this message. [Read Message ...]
Re: VOTE: EBP Data sharing policy
Lily Rodriguez Bayona (CIMA-Lima)
Tue, 8 Jul 2025 19:52:40 -0500
Dear Debra,

I will vote YES and agree with the general terms of this draft. I have
however made a suggestion in considering the “blurring” of the localities
not only for IPLC but also upon request of authorities of the country of
origin; this may happens for instance in case of protected areas and
endangered species.

[More ...]
Re: VOTE: EBP Data sharing policy
Torrance, Andrew W.
Wed, 9 Jul 2025 01:32:49 +0000
I vote YES as well.

On Jul 8, 2025, at 20:00, Lily Rodriguez Bayona (CIMA-Lima) <[log in to unmask]> wrote:


Dear Debra,

I will vote YES and agree with the general terms of this draft. I have however made a suggestion in considering the “blurring” of the localities not only for IPLC but also upon request of authorities of the country of origin; this may happens for instance in case of protected areas and endangered species.

[More ...]
Re: VOTE: EBP Data sharing policy
Cynthia Saloma
Wed, 9 Jul 2025 09:58:25 +0800
I vote Yes.

-Cynthia

*::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::*

*CYNTHIA P. PALMES-SALOMA, PhD*
*Professor of Molecular Biology and Biotechnology*
National Inst. of Molecular Biology and Biotechnology
National Science Complex, College of Science
University of the Philippines Diliman
1101 Quezon City, PHILIPPINES
Tel Direct Line: (+632) 8981 8615
VOIP: (+632) 8981 8500 loc 8623

*Philippine Genome Center *
PGC Building, Regidor St., Diliman Campus
University of the Philippines
Quezon City 1101 PHILIPPINES
Tel Direct Line: (+632) 8981 8624
VOIP: (+632) 8981 8500 loc 4701

[More ...]
Re: VOTE: EBP Data sharing policy
Richard Durbin
Wed, 9 Jul 2025 14:59:30 +0000
As the convener of the policy, I note that the text about blurring of location currently says:

Blurring of the location beyond 1km is permitted when needed to protect the conservation status of sensitive species or populations, or if requested by an Indigenous people or local community in order to protect their cultural heritage when sampling in proximity to a site of cultural significance.

[More ...]
Re: VOTE: EBP Data sharing policy
Debra Mathews
Wed, 9 Jul 2025 20:09:30 +0000
Many thanks, all! I have kept this policy on the agenda (attached) for tomorrow’s meeting, given the questions that came up during the vote.

Best,
Debra
Re: VOTE: EBP Data sharing policy
Uljana Hesse
Thu, 10 Jul 2025 15:48:43 +0200
Hi there,
I am happy with this draft, but would like to extend the embargo period to
3 years, since in some countries it take more time to realize the lab work.

I have been trying to join the meeting, but nobody is there, am I too early?

Kind regards
Uljana

On Mon, Jul 7, 2025 at 6:05 PM Debra Mathews <
[log in to unmask]> wrote:

[More ...]
Re: VOTE: EBP Data sharing policy
Debra Mathews
Fri, 11 Jul 2025 12:27:41 +0000
Hi Uljana,

The meeting ended at about 9:50am EDT yesterday morning, so we must have just missed you! We finalized and sent forward the data sharing draft, but I expect that we will receive comments back from the EC and so will have it back on our agenda next month.

All — please find attached the minutes from yesterday's meeting, including a link to the recording. I will circulate the revised membership spreadsheet ASAP, but I will not be able to get to it until after next week.

[More ...]
Re: VOTE: EBP Data sharing policy
Robert Cook-Deegan
Fri, 11 Jul 2025 10:48:11 -0400
Uljana,

One reason for the 1-year embargo was advice from the lawyers that in order
to be exempt from export sanctions, 1 year was probably the maximum.

BCD

[image: ASU SHARES]
Robert Cook-Deegan, MD
Professor, Arizona State University
Barrett & O'Connor Washington Center
1800 I (Eye) Street, NW
Washington, DC 20006
[log in to unmask]
sfis.asu.edu
https://cspo.org/
"I want to see America be what she says she is in the Declaration of
Independence and the Constitution."—Pauli Murray
I live and work in Accokeek, MD, the ancestral lands of the Piscataway
Nation—the former seat of empire for the mid-Atlantic Algonquin
confederation. Reconstructing that history

[More ...]
EBP ELSI Committee Meeting minutes and agenda
Debra Mathews
Wed, 11 Jun 2025 19:54:43 +0000
Reply
Hi all,

Please find attached the minutes from the May meeting, the agenda for tomorrow’s meeting, and a paper that Bob found that might be of interest. Please also add any edits/comments to the data sharing policy before tomorrow’s meeting: https://docs.google.com/document/d/1zPx_-JTxg_mOwxBuTviuL6I-RrHLoFTH/edit#heading=h.gjdgxs

Best,
Debra
Reply
Show Replies 13 Replies
Re: EBP ELSI Committee Meeting minutes and agenda
Uljana Hesse
Wed, 11 Dec 2024 09:02:06 +0200
Dear Colleagues,
please find my version and argument attached. Please do extensively
comment and, if possible, come to the meeting, as I think that Richard and
I have exhaustively discussed our perspectives and we now really need
everyone's input.

Kind regards
Uljana

On Thu, Dec 5, 2024 at 5:46 PM Debra Mathews <
[log in to unmask]> wrote:

> Hi all,
>
> Please find attached last month’s meeting minutes and next week’s agenda —
> please send edits/comments on both, as needed!
>
> Best,
> Debra
>
>
>
> ______________________________________________________
>
> Debra JH Mathews, PhD, MA
> Associate Director for

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Richard Durbin
Thu, 12 Dec 2024 13:58:58 +0000
Dear all

I am sorry I have been pre-occupied by other things. My position I don’t think is so far from, or incompatible with, Uljana’s.

I am very happy for any nation to make a list of species, or classes of species (such as all plants, or all vertebrates, or all species) for which they do not wish EBP members to generate and deposit reference genomes in INSDC, where these are generated from samples derived from their territory. That is their sovereign right under CBD. Currently New Zealand says no to all species, which is totally OK and we all

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Richard Durbin
Thu, 12 Dec 2024 14:07:45 +0000
Here is my version from last time, which hasn’t changed, but open to discussion as below.

From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Richard Durbin <[log in to unmask]>
Date: Thursday, 12 December 2024 at 14:00
To: [log in to unmask] <[log in to unmask]>
Subject: Re: EBP ELSI Committee Meeting minutes and agenda
Dear all

I am sorry I have been pre-occupied by other things. My position I don’t think is so far from, or incompatible with, Uljana’s.

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Re: EBP ELSI Committee Meeting minutes and agenda
Krystal Tsosie
Thu, 12 Dec 2024 14:27:54 +0000
Hi all,

Here are my comments:

1. I prefer Uljana’s language: “This implies that this reference sequence information be free of any legal encumbrances, including patents or restrictive use licenses”. My concern with any language that includes “mandate” is that it reads punitively, and we do not really have authority or capacity to uphold it.
2. I like Richard’s suggestion for #2

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Debra Mathews
Thu, 12 Dec 2024 15:33:24 +0000
Hi all,

As promised, please find attached a revised, clean draft of the IP policy, based on Uljana’s and Richard’s most recent drafts and today’s conversation. At the end of the call, we agreed that we would all do a final read of this version, send any critical comments/edits, and that I would then finalize and send forward to the Executive Committee for feedback.

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Richard Durbin
Thu, 12 Dec 2024 16:50:24 +0000
Hello everyone

Here is the current draft Data Sharing policy. The only significant changes since the last circulated version are (1) that following Krystal’s comments I have added an explicit reference to LocalContexts, and (2) that I added paragraph 4 about there being a one-year limit on embargos, modelling the language on that in the Governance document.

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Nicolette Caperello
Thu, 12 Dec 2024 17:06:57 +0000
Dear All,

Here’s a Zoom link for your use on Dec 19th.

https://asu.zoom.us/j/83221399242?pwd=T02caZao6KQyTcabhUgw632tSDqKPq.1
Password: 855576

Best,

Nicolette Caperello
Executive Director, Earth BioGenome Project
Global Futures Laboratory | Walton Center for Planetary Health | Arizona State University

From: Richard Durbin <[log in to unmask]>
Date: Thursday, December 12, 2024 at 8:53 AM
To: Debra Mathews <[log in to unmask]>, "[log in to unmask]" <[log in to unmask]>, Nicolette Caperello <[log in to unmask]>
Subject: Re: EBP ELSI Committee Meeting minutes and agenda

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Richard Durbin
Thu, 12 Dec 2024 17:35:50 +0000
Thanks Nicolette. Richard

From: Nicolette Caperello <[log in to unmask]>
Date: Thursday, 12 December 2024 at 17:08
To: Richard Durbin <[log in to unmask]>, Debra Mathews <[log in to unmask]>, [log in to unmask] <[log in to unmask]>
Subject: Re: EBP ELSI Committee Meeting minutes and agenda
Dear All,

Here’s a Zoom link for your use on Dec 19th.

https://asu.zoom.us/j/83221399242?pwd=T02caZao6KQyTcabhUgw632tSDqKPq.1
Password: 855576

Best,

Nicolette Caperello
Executive Director, Earth BioGenome Project
Global Futures Laboratory | Walton Center for Planetary Health | Arizona State University

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Debra Mathews
Thu, 12 Dec 2024 22:16:06 +0000
Thanks, Richard — I can make 9am EST/2pm GMT on Thursday the 19th.

And thanks, Nicolette, for sending zoom info!

https://asu.zoom.us/j/83221399242?pwd=T02caZao6KQyTcabhUgw632tSDqKPq.1

Password: 855576

Best,
Debra
Re: EBP ELSI Committee Meeting minutes and agenda
Joseph Yracheta
Fri, 13 Dec 2024 13:20:37 -0600
Hello All,

Sorry, I was on pressing business in Bethesda,
I will look over the "final" version Dr. Mathews
sent over and make any comments....but I am sure you all have handled it
well.

Thanks
*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate
*P'urhépecha & Rar**á**murì*
Executive Director, Native BioData Consortium
South Dakota
605-222-2625

On Thu, Dec 12, 2024 at 4:20 PM Debra Mathews <
[log in to unmask]> wrote:

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Robert Cook-Deegan
Tue, 17 Dec 2024 13:15:26 -0500
Manuela,

Here's my response (see replies to comments).

Deb, this would suggest two revisions, as indicated in the comments.

BCD

[image: ASU SHARES]
Robert Cook-Deegan, MD
Professor, Arizona State University
Barrett & O'Connor Washington Center
1800 I (Eye) Street, NW
Washington, DC 20006
[log in to unmask]
sfis.asu.edu
https://cspo.org/
"I want to see America be what she says she is in the Declaration of
Independence and the Constitution."—Pauli Murray
I live and work in Accokeek, MD, the ancestral lands of the Piscataway
Nation—the former seat of empire for the mid-Atlantic Algonquin
confederation. Reconstructing that history is a productive blending of
disciplines and cultures,

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Richard Durbin
Wed, 18 Dec 2024 00:12:02 +0000
Thank you Manuela and Bob

Manuela’s comment on clause 3 reflects exactly the concern that I had been trying to express. I fully support the first sentence
It is the intent of the EBP that submitted sequences have no restrictions on download and as few restrictions on use as [are] consistent with local law and equity.
where I believe the interpretation Bob gives is what Debra intended and is the natural meaning in English. The “few” permitted restrictions are those required by law and equity, with nothing further added by the submitter (or anyone else). [To be grammatically nitpicky I

[More ...]
Re: EBP ELSI Committee Meeting minutes and agenda
Debra Mathews
Thu, 12 Jun 2025 19:26:59 +0000
Hi all,

Please find attached the minutes from today’s meeting. Please send any revisions/additions. Many thanks!

Best,
Debra
EBP ELSI Committee Meeting -- May agenda
Debra Mathews
Wed, 7 May 2025 16:49:39 +0000
Reply
Hi all,

Please find attached the agenda for tomorrow’s meeting.

Richard — please circulate the most recent draft of the Data Sharing document.

Best,
Debra
Reply
Show Replies 2 Replies
Re: EBP ELSI Committee Meeting -- May agenda
Joseph Yracheta
Wed, 7 May 2025 16:15:12 -0500
I am likely not able to be at this meeting tomorrow
But I will try.

*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate
*P'urhépecha & Rar**á**murì*
Executive Director, Native BioData Consortium
South Dakota
605-222-2625

On Wed, May 7, 2025 at 11:53 AM Debra Mathews <
[log in to unmask]> wrote:

> Hi all,
>
> Please find attached the agenda for tomorrow’s meeting.
>
> Richard — please circulate the most recent draft of the Data Sharing
> document.
>
> Best,
> Debra
>
>
>
> ______________________________________________________
>
> Debra JH Mathews, PhD, MA
> Associate Director for Research and Programs
> *BERMAN INSTITUTE*

[More ...]
Re: EBP ELSI Committee Meeting -- May agenda
Richard Durbin
Thu, 8 May 2025 14:16:43 +0000
Dear all

Those of us who were on the call today discussed the draft Data Sharing Policy. The resulting document with edits from today is available at

https://docs.google.com/document/d/1zPx_-JTxg_mOwxBuTviuL6I-RrHLoFTH/edit?usp=sharing&ouid=100659754800707401321&rtpof=true&sd=true

You should all have access with suggestion/commenter rights. Please feel free to add suggestions/comments and/or email me or the whole group. If you don’t have access then please email me with the Google identity email address you would like me to add.

[More ...]
EBP ELSI Committee April 10/11 meeting agenda
Debra Mathews
Mon, 7 Apr 2025 15:07:30 +0000
Reply
Hi all,

Please find attached the agenda for Thursday’s meeting.

I’m also including again the minutes from the last meeting, for reference.

Best,
Debra
Reply
Show Replies 1 Reply
Re: EBP ELSI Committee April 10/11 meeting agenda
Debra Mathews
Thu, 10 Apr 2025 17:25:01 +0000
Many thanks to everyone who was able to attend today! Meeting minutes attached.

Best,
Debra
EBP Action item: document from the Digital Scientific Network
Nicolette Caperello
Tue, 25 Mar 2025 22:35:23 +0000
Reply
Sent on behalf of Harris Lewin

Dear All:

Please find the attached important document from the Digital Scientific Network. If you have any feedback, please send it in the next 48 hours.

Thanks,
Harris

Best,

Nicolette Caperello
Executive Director, Earth BioGenome Project
Global Futures Laboratory | Walton Center for Planetary Health | Arizona State University
Reply
Show Replies 1 Reply
Re: EBP Action item: document from the Digital Scientific Network
Robert Cook-Deegan
Wed, 26 Mar 2025 13:55:11 -0400
This is basically an argument for augmenting current data structures and
not building a new database.

Makes sense.

But a few observations about the text, which are probably too difficult to
accommodate, but perhaps worth observing.

It is quite common for such statements to begin with a description of the
organization and the members it represents. But it's irrelevant to the
substance and could be handled by a footnote. It delays getting to the
point to paragraph 3.

[More ...]
IP principles VOTE (plus March minutes) Re: 3/13-14 EBP ELSI Meeting Agenda
Debra Mathews
Tue, 25 Mar 2025 19:49:06 +0000
Reply
Hi all,

Please find attached the minutes from the March meeting, along with the final draft of the IP principles. As noted in the minutes, we agreed on the last call to put this final draft up for a vote. Folks on the call, along with the EBP Executive Committee, are supportive of this draft.

[More ...]
Reply
Show Replies 3 Replies
Fwd: IP principles VOTE (plus March minutes) Re: 3/13-14 EBP ELSI Meeting Agenda
Debra Mathews
Sun, 30 Mar 2025 21:11:26 +0000
Hi all,

I have only received votes on the IP guidelines from six members of the committee — 51% of the full committee (currently 17 people) is required for approval. Please reply to me ASAP and by end of day Monday at the latest with your vote.

The minutes from the March meeting and the final draft of the IP principles are attached.

[More ...]
Re: IP principles VOTE (plus March minutes) Re: 3/13-14 EBP ELSI Meeting Agenda
Debra Mathews
Tue, 1 Apr 2025 21:17:18 +0000
Hi all,

The IP principles document has been approved by the committee (10 Yes; 0 No; 7 folks didn’t vote). It will now be forwarded to the Executive Committee for final vote/adoption by the EBP.

Now, on to data sharing, embargo, AI, etc.!

Best,
Debra
Re: IP principles VOTE (plus March minutes) Re: 3/13-14 EBP ELSI Meeting Agenda
Debra Mathews
Tue, 1 Apr 2025 22:33:42 +0000
Hi all,

I am traveling for work and jet lagged, so failed to add to my below email:

THANK YOU to the Committee for your diligent work on this document and particularly to Bob, Andrew, Uljana, and Richard, for your sincere engagement with and effort toward this long, deliberative process.

With gratitude,
Debra
RES: 3/13-14 EBP ELSI Meeting Agenda
Manuela da Silva
Thu, 13 Mar 2025 12:17:00 +0000
Reply
Hi Debra and All!

Unfortunately I can't attend the meeting today because I have another meeting.
I would just like to report that I participated in COP 16.2 (February 25-27), which was the resume of COP 16 that was not finalized in Cali.
This meeting took place in Rome, in UN Food and Agriculture Organization Headquarters (FAO), and all the decisions, which were mainly related to financing and monitoring, were approved. The decision on DSI (16/2) that was adopted by CBD COP16 was also approved by COP-MOP Nagoya Protocol.
On the same occasion, the Cali Fund, which will receive the

[More ...]
Reply
No Replies
3/13-14 EBP ELSI Meeting Agenda
Debra Mathews
Wed, 12 Mar 2025 23:34:14 +0000
Reply
Hi all,

With apologies (again!) for getting this to you so late, please find attached the agenda for tomorrow’s meeting.

Please also note that Daylight Saving Time started in most of the US last weekend, so please double check the time.

Best,
Debra
Reply
No Replies
TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Debra Mathews
Fri, 14 Feb 2025 01:11:13 +0000
Reply
Dear colleagues,

Please find attached the minutes from today’s meeting and the version of the IP policy we intend to send back to Harris and the rest of the Executive Committee. Please review this version. The view of the folks on the call today was that we (after much deliberation over almost three years and with periodic input from the Executive Committee) are comfortable with this document as is. Point 1 of this document accurately represents what we understand the goal of EBP to be. The Executive Committee seems to be pushing back on the main point of the document

[More ...]
Reply
Show Replies 12 Replies
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Anita Ghansah
Fri, 14 Feb 2025 07:36:03 +0000
Dear Debra,
Thanks for your message. I have read the policy document and I am happy with it and also the approach.
Kind regards
Anita

[Outlook-xxt1tl30.png]<https://noguchi.org.gh/>

[Outlook-rdufhljx.png]<https://www.ug.edu.gh/>

Professor Anita Ghansah
Associate Professor of Genetic Epidemiology &
Head of Parasitology Department
Calestous Juma Science Leadership Fellow
Deputy Director, DELGEME_Plus
Office: Noguchi Memorial Institute for Medical Research

Telephone: +233(0)271405535

Email: [log in to unmask]<mailto:[log in to unmask]>

University website: www.ug.edu.gh<https://www.ug.edu.gh/>

NMIMR website: www.noguchi.ug<http://www.noguchi.ug/>.edu.gh<https://www.noguchi.org.gh/>
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Manuela da Silva
Fri, 14 Feb 2025 22:29:35 +0000
Dear Debra,

Thank you very much for the minutes from our last meeting and the new version of the IP policy.
I agree with the approach and with the draft.
I wish you all a good weekend.
Best,
Manuela

[Marca Fiocruz]
MANUELA DA SILVA

Gerente Geral • General Manager

Biobanco da Biodiversidade e Saúde da Fiocruz • Fiocruz Biodiversity and Health Biobank<https://biobanco-bbs.fiocruz.br/pt-br>

[More ...]
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Krystal Tsosie
Fri, 14 Feb 2025 23:33:44 +0000
I agree with the approach and the draft. Thank you, all, for your work!
Krystal

From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Manuela da Silva <[log in to unmask]>
Date: Friday, February 14, 2025 at 3:30 PM
To: [log in to unmask] <[log in to unmask]>
Subject: Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Dear Debra,

[More ...]
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Cynthia Saloma
Sat, 15 Feb 2025 11:29:57 +0800
I agree with the draft and approach.

Cheers,
Cynthia

On Fri, Feb 14, 2025, 9:15 AM Debra Mathews, <
[log in to unmask]> wrote:

> Dear colleagues,
>
> Please find attached the minutes from today’s meeting and the version of
> the IP policy we intend to send back to Harris and the rest of the
> Executive Committee. *Please review this version.* The view of the folks
> on the call today was that we (after much deliberation over almost three
> years and with periodic input from the Executive Committee) are comfortable
> with this document as is. Point 1

[More ...]
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Irus Braverman
Sat, 15 Feb 2025 19:05:27 +0000
Same here, thank you!

+++
Dr. Irus Braverman (she/her)
William J. Magavern Faculty Scholar
Professor of Law, Adjunct Professor of Geography, and Research Professor at the Department of Environment & Sustainability
University at Buffalo, The State University of New York
https://www.irusbraverman.org/

From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Krystal Tsosie <[log in to unmask]>
Reply-To: Krystal Tsosie <[log in to unmask]>
Date: Friday, February 14, 2025 at 6:34 PM
To: "[log in to unmask]" <[log in to unmask]>
Subject: Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft

[More ...]
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Torrance, Andrew W.
Sat, 15 Feb 2025 19:19:21 +0000
I agree with the draft too.

On Feb 15, 2025, at 13:17, Irus Braverman <[log in to unmask]> wrote:


Same here, thank you!

+++
Dr. Irus Braverman (she/her)
William J. Magavern Faculty Scholar
Professor of Law, Adjunct Professor of Geography, and Research Professor at the Department of Environment & Sustainability
University at Buffalo, The State University of New York
https://www.irusbraverman.org/

From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Krystal Tsosie <[log in to unmask]>
Reply-To: Krystal Tsosie <[log in to unmask]>
Date: Friday, February 14, 2025 at 6:34 PM
To: "[log in to unmask]" <[log in to unmask]>
Subject: Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy

[More ...]
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Melissa Goldstein
Sat, 15 Feb 2025 14:34:30 -0500
agreed. thank you!

Melissa M. Goldstein, J.D.
Professor | Department of Health Policy and Management
Milken Institute School of Public Health
The George Washington University
o 202-994-4235
[log in to unmask]

"Liberty and duty, freedom and responsibility. *That's the deal*." - John
W. Gardner

On Sat, Feb 15, 2025 at 2:17 PM Irus Braverman <
[log in to unmask]> wrote:

> Same here, thank you!
>
>
>
> +++
>
> Dr. Irus Braverman (she/her)
>
> William J. Magavern Faculty Scholar
> Professor of Law, Adjunct Professor of Geography, and Research Professor
> at the Department of Environment & Sustainability
>
> University at Buffalo,

[More ...]
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Joseph Yracheta
Sat, 15 Feb 2025 21:04:57 -0600
Hello Everyone

I agree with the approach and the draft.

Thank you
*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate
*P'urhépecha & Rar**á**murì*
Executive Director, Native BioData Consortium
South Dakota
605-222-2625

On Sat, Feb 15, 2025 at 1:36 PM Melissa Goldstein <
[log in to unmask]> wrote:

> agreed. thank you!
>
> Melissa M. Goldstein, J.D.
> Professor | Department of Health Policy and Management
> Milken Institute School of Public Health
> The George Washington University
> o 202-994-4235
> [log in to unmask]
>
> "Liberty and duty, freedom and responsibility. *That's the deal*." - John
> W. Gardner
>
>
> On Sat, Feb 15,

[More ...]
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Uljana Hesse
Sun, 16 Feb 2025 06:34:18 +0200
Hi there,
I agree with the draft and the approach.

Kind regards
Uljana Hesse

On Sun, Feb 16, 2025 at 5:03 AM Joseph Yracheta <[log in to unmask]>
wrote:

> Hello Everyone
>
> I agree with the approach and the draft.
>
> Thank you
> *Joe Yracheta*, MS Pharmaceutics, DrPH Candidate
> *P'urhépecha & Rar**á**murì*
> Executive Director, Native BioData Consortium
> South Dakota
> 605-222-2625
>
>
> On Sat, Feb 15, 2025 at 1:36 PM Melissa Goldstein <
> [log in to unmask]> wrote:
>
>> agreed. thank you!
>>
>> Melissa M. Goldstein, J.D.
>> Professor | Department of Health Policy and Management


[More ...]
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Debra Mathews
Mon, 17 Feb 2025 16:03:42 +0000
Thank you, all! I’ve included the Committee on my email to Harris.

Best,
Debra
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Richard Durbin
Mon, 17 Feb 2025 16:10:56 +0000
Just to let people know that I haven’t completely disappeared, I have been in touch independently with Debra and am also fine with proceeding this way.

Richard

From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Debra Mathews <[log in to unmask]>
Date: Monday, 17 February 2025 at 08:05
To: [log in to unmask] <[log in to unmask]>
Subject: Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
Thank you, all! I’ve included the Committee on my email to Harris.

[More ...]
Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
<>
Mon, 17 Feb 2025 11:11:50 -0500
Dear Debra,

I agree with the scope and wording of the document. Very sorry for the delay, even when I am late I wanted to make sure you know that I agree!

Have a nice week, lily

Dra. Lily O. Rodríguez

Directora de Desarrollo Institucional e Investigaciones

Centro de Conservación, Investigación y Manejo de

Áreas Naturales - Cordillera Azul (CIMA-Cordillera Azul)

[More ...]
2/14 meeting agenda + IP policy draft
Debra Mathews
Wed, 12 Feb 2025 23:14:04 +0000
Reply
Dear colleagues,

Apologies for not having gotten this to you last week. Please find attached our agenda for tomorrow, along with the most recent draft of the IP Policy, with the couple of comments that we received from the Executive Committee that we need to discuss.

Best,
Debra
Reply
Show Replies 4 Replies
Re: 2/14 meeting agenda + IP policy draft
Cynthia Saloma
Thu, 13 Feb 2025 07:24:48 +0800
Noted with thanks, Debra.

-Cynthia

On Thu, 13 Feb 2025, 7:19 am Debra Mathews, <
[log in to unmask]> wrote:

> Dear colleagues,
>
> Apologies for not having gotten this to you last week. Please find
> attached our agenda for tomorrow, along with the most recent draft of the
> IP Policy, with the couple of comments that we received from the Executive
> Committee that we need to discuss.
>
> Best,
> Debra
>
>
>
> ______________________________________________________
>
> Debra JH Mathews, PhD, MA
> Associate Director for Research and Programs
> *BERMAN INSTITUTE* OF BIOETHICS
> Professor, Genetic

[More ...]
Re: 2/14 meeting agenda + IP policy draft
Maui HUDSON
Thu, 13 Feb 2025 02:03:07 +0000
Kia Ora Koutou,

Apologies for tmrw. I’m back in NZ and it’s scheduled for 3am.

Maui

Get Outlook for iOS<https://aka.ms/o0ukef>
Re: 2/14 meeting agenda + IP policy draft
Richard Durbin
Thu, 13 Feb 2025 13:46:25 +0000
Very sorry. I can’t make today’s meeting. Richard

From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Debra Mathews <[log in to unmask]>
Date: Wednesday, 12 February 2025 at 23:19
To: [log in to unmask] <[log in to unmask]>
Subject: 2/14 meeting agenda + IP policy draft
Dear colleagues,

Apologies for not having gotten this to you last week. Please find attached our agenda for tomorrow, along with the most recent draft of the IP Policy, with the couple of comments that we received from the Executive Committee that we need to discuss.

[More ...]
Re: 2/14 meeting agenda + IP policy draft
<>
Thu, 13 Feb 2025 09:00:44 -0500
Dear Debra, I can’t make it but I will read and send comments, apologies,
lily

Dra. Lily O. Rodríguez

Directora de Desarrollo Institucional e Investigaciones

Centro de Conservación, Investigación y Manejo de

Áreas Naturales - Cordillera Azul (CIMA-Cordillera Azul)

Av. Ricardo Palma 341, Of. 302

Miraflores, Lima 18. PERU

T: +(51) 969707050

<mailto:[log in to unmask]> [log in to unmask]

www.cima.org.pe <http://www.cima.org.pe/>

De: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]>
En nombre de Debra Mathews
Enviado el: miércoles, 12 de febrero de 2025 06:14 p. m.
Para: [log in to unmask]
Asunto: 2/14 meeting agenda + IP policy draft

[More ...]
EBP ELSI Committee Meeting Agenda
Debra Mathews
Mon, 6 Jan 2025 20:24:59 +0000
Reply
Hi all,

Apologies for the delay — please find attached the agenda for Thursday’s/Friday’s meeting.

Best,
Debra
Reply
Show Replies 9 Replies
Re: EBP ELSI Committee Meeting Agenda
Kress, John
Mon, 6 Jan 2025 21:37:32 +0000
Dear ELSI Team:

The time has come for me to depart from the wonderful ELSI Committee and devote my time to other academic activities. I have a number of manuscripts and books as well a local conservation efforts that I need to focus on for the next few years. I will always be available for further consultation on issues, such as DSI, and will join discussions when appropriate. Our Chair Debra is aware of my availability.

[More ...]
Re: EBP ELSI Committee Meeting Agenda
Debra Mathews
Mon, 6 Jan 2025 22:05:57 +0000
John,

Many thanks for your service! I have greatly appreciated the opportunity to work with and learn from you.

I wish you luck in your writing projects and offer my thanks for your conservation efforts!

Best,
Debra
Re: EBP ELSI Committee Meeting Agenda
Melissa Goldstein
Wed, 8 Jan 2025 09:18:03 -0500
Hi all,

Forwarding on a new document by the AfricaBP ELSI Subcommittee, the
"Practical Guide to Accessing and Sharing Biological Diversity Material and
Data: A Research Stage-Based Approach." Rob Waterhouse (of our Governance
Comm) gave me the heads-up and says it appears to be more of a checklist
than a guide. I haven't had the chance to review it yet.

[More ...]
Re: EBP ELSI Committee Meeting Agenda
Krystal Tsosie
Thu, 9 Jan 2025 00:36:08 +0000
With apologies, I must miss tomorrow’s meeting. My family and I are dealing with some unfortunate news.

Krystal

From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Debra Mathews <[log in to unmask]>
Date: Monday, January 6, 2025 at 1:29 PM
To: [log in to unmask] <[log in to unmask]>
Subject: EBP ELSI Committee Meeting Agenda
Hi all,

Apologies for the delay — please find attached the agenda for Thursday’s/Friday’s meeting.

[More ...]
Re: EBP ELSI Committee Meeting Agenda
Melissa Goldstein
Wed, 8 Jan 2025 20:01:11 -0500
Sorry for forgetting the link!

https://osf.io/5zthf

Melissa M. Goldstein, J.D.
Professor | Department of Health Policy and Management
Milken Institute School of Public Health
The George Washington University
o 202-994-4235
[log in to unmask]

"Liberty and duty, freedom and responsibility. *That's the deal*." - John
W. Gardner

On Wed, Jan 8, 2025 at 9:18 AM Melissa Goldstein <[log in to unmask]> wrote:

> Hi all,
>
> Forwarding on a new document by the AfricaBP ELSI Subcommittee, the
> "Practical Guide to Accessing and Sharing Biological Diversity Material and
> Data: A Research Stage-Based Approach." Rob Waterhouse (of our Governance
> Comm) gave me the heads-up and

[More ...]
Re: EBP ELSI Committee Meeting Agenda
Uljana Hesse
Thu, 9 Jan 2025 10:49:33 +0200
Dear Colleagues,
Happy New Year everyone!!! Just a heads up: I will try to come, but may not
make it.

Kind regards
Uljana

On Thu, Jan 9, 2025 at 3:02 AM Melissa Goldstein <
[log in to unmask]> wrote:

> Sorry for forgetting the link!
>
> https://osf.io/5zthf
>
>
> Melissa M. Goldstein, J.D.
> Professor | Department of Health Policy and Management
> Milken Institute School of Public Health
> The George Washington University
> o 202-994-4235
> [log in to unmask]
>
> "Liberty and duty, freedom and responsibility. *That's the deal*." - John
> W. Gardner
>
>
> On Wed, Jan 8,

[More ...]
Re: EBP ELSI Committee Meeting Agenda
Richard Durbin
Thu, 9 Jan 2025 13:54:38 +0000
I am sorry, I am in a meeting elsewhere that I can’t get out of. Richard

From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Uljana Hesse <[log in to unmask]>
Date: Thursday, 9 January 2025 at 08:50
To: [log in to unmask] <[log in to unmask]>
Subject: Re: EBP ELSI Committee Meeting Agenda
Dear Colleagues,
Happy New Year everyone!!! Just a heads up: I will try to come, but may not make it.

[More ...]
Re: EBP ELSI Committee Meeting Agenda
Maui Hudson
Thu, 9 Jan 2025 15:05:52 +0000
Apologies too, just been on holiday and arrived home too late to join.

Maui
Re: EBP ELSI Committee Meeting Agenda
Debra Mathews
Thu, 9 Jan 2025 19:40:19 +0000
Hi all,

Please find attached the minutes from today’s meeting (including the link to the zoom recording) and the track-changes version of the IP policy, based on today’s discussion.

Best,
Debra
EBP IP Policy for feedback
Debra Mathews
Sun, 5 Jan 2025 23:35:10 +0000
Reply
Dear Harris,

Happy New Year! Please find attached the draft EBP IP policy from the ELSI Committee, for review and feedback from the Executive Committee. We look forward to hearing your collective thoughts and to moving this policy toward finalization.

Best,
Debra
Reply
Show Replies 3 Replies
Re: EBP IP Policy for feedback
Harris Lewin
Mon, 6 Jan 2025 18:50:15 +0000
Dear Debra:

Happy New Year to you and the ELSI Committee! Thank you for the draft of the IP Policy. We will discuss it at this week's Executive Council meeting.

Best,

Harris

From: Debra Mathews <[log in to unmask]>
Sent: Sunday, January 5, 2025 3:35 PM
To: Harris Lewin <[log in to unmask]>
Cc: [log in to unmask]
Subject: EBP IP Policy for feedback

Dear Harris,

Happy New Year! Please find attached the draft EBP IP policy from the ELSI Committee, for review and feedback from the Executive Committee. We look forward to hearing your collective thoughts and to moving this policy toward finalization.

[More ...]
Re: EBP IP Policy for feedback
Debra Mathews
Mon, 17 Feb 2025 16:02:49 +0000
Dear Harris,

I’m writing to follow up on my meeting with the Executive Committee in January regarding the EBP IP Policy drafted by the ELSI Committee. The ELSI Committee met last week and discussed the feedback from the EC and are submitting now our proposed IP Policy (attached). We have made a change to the opening paragraph that we think addresses Mark Blaxter’s concern, but would like his feedback on this point.

[More ...]
Re: EBP IP Policy for feedback
Harris Lewin
Tue, 18 Feb 2025 00:24:58 +0000
Dear Debra:

Thank you and the ELSI Committee for the revised document. The EC will discuss the document at our next meeting on February 26. I will get back to you with the EC’s comments after the meeting.

Best,

Harris

From: Debra Mathews <[log in to unmask]>
Sent: Monday, February 17, 2025 8:03 AM
To: Harris Lewin <[log in to unmask]>
Cc: [log in to unmask]
Subject: Re: EBP IP Policy for feedback

[More ...]
RES: EBP ELSI Committee Meeting minutes and agenda
Manuela da Silva
Fri, 20 Dec 2024 14:47:03 +0000
Reply
Thank you Bob and Richard for your comments.

I agree that it is important to require that any legal restrictions on use that do arise from legislation or quite should be explicitly stated.

I think we should make it clearer that “local law” refers to the law of the country/location from which the sample giving rise to the sequence was taken, rather than the location of the sequencer/submitter.

[More ...]
Reply
Show Replies 1 Reply
Re: RES: EBP ELSI Committee Meeting minutes and agenda
Debra Mathews
Thu, 2 Jan 2025 16:55:47 +0000
Hi all,

Happy New Year! I hope that you had enjoyable holidays and a bit of a break. Please find attached both a track-changes and clean version of the draft that I plan to send forward to the Executive Committee for feedback by the end of the weekend, barring additional discussion.

[More ...]
RES: EBP ELSI Committee Meeting minutes and agenda
Manuela da Silva
Tue, 17 Dec 2024 17:52:03 +0000
Reply
Dear Debra and Richard,

Unfortunately, I am not available at this time. It is a pity because I have some questions. I may not have understood the discussion during the last meeting, I am sorry for this. But I hope you can answer my questions in the attached document.

Thank you!
Kind regards,
Manuela

[More ...]
Reply
No Replies
EBP ELSI Committee Meeting minutes and agenda
Debra Mathews
Thu, 5 Dec 2024 15:41:22 +0000
Reply
Hi all,

Please find attached last month’s meeting minutes and next week’s agenda — please send edits/comments on both, as needed!

Best,
Debra
Reply
No Replies
RES: RESCHEDULING Re: This Thursday's ELSI meeting
Manuela da Silva
Thu, 13 Jun 2024 13:23:33 +0000
Reply
Dear Debra,

Thank you for your message and the documents.
Nest week I will be in vacation, so I won´t participate of the meeting.

Regarding DSI, I can bring here some information.

Yesterday, June 12th, we had the sixth meeting of the Informal Advisory Group on Benefit-sharing from the Use of DSI, about trigger points for benefit sharing contribution.

[More ...]
Reply
No Replies
RESCHEDULING Re: This Thursday's ELSI meeting
Debra Mathews
Wed, 12 Jun 2024 21:46:53 +0000
Reply
Hi all,

With apologies for the late notice and due to a number of folks not being available for tomorrow, and the importance of finalizing the IP policy (most recent draft circulated by Bob Cook-Deegan on Monday and also attached here), we have decided to reschedule tomorrow’s meeting.

The new June meeting time will be Friday June 21st, 9-10am EDT. I received no edits to the agenda, so the attached is still current.

[More ...]
Reply
Show Replies 1 Reply
Re: RESCHEDULING Re: This Thursday's ELSI meeting
Cynthia Saloma
Thu, 13 Jun 2024 06:59:57 +0800
Thanks fo the info, Debra. Noted on the change of meeting sched.

Cheers,
Cynthia

On Thu, Jun 13, 2024, 5:50 AM Debra Mathews, <
[log in to unmask]> wrote:

> Hi all,
>
> With apologies for the late notice and due to a number of folks not being
> available for tomorrow, and the importance of finalizing the IP policy
> (most recent draft circulated by Bob Cook-Deegan on Monday and also
> attached here), we have decided to *reschedule tomorrow’s meeting*.
>
> The *new June meeting time will be Friday June 21st, 9-10am EDT.* I
> received no edits to

[More ...]
EBP ELSI Committee
Debra Mathews
Wed, 27 Mar 2024 13:47:17 +0000
Reply
Upcoming Meetings*, all at 9am EDT: 
April 11/12
May 9/10
June 13/14
July 11/12
August 8/9 (Debra unavailable this week)
[in July/August, we will revisit scheduling for the last quarter of the year]

*all meetings use the same zoom information (https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09; Code: 032450)
Reply
No Replies
Rescheduled for 3/28 Re: This Thursday's ELSI meeting
Debra Mathews
Thu, 21 Mar 2024 17:58:36 +0000
Reply
Hi all,

I am rescheduling the March meeting for next Thursday March 28 at 9am EDT. Please note that much of the US has moved to Daylight Savings Time, so please double check your local time.

Please also see below/attached for the draft agenda and let me know if you have any additions/edits. My plan going forward is to take notes on the agenda in the Word doc and then circulate the agenda/notes document after the meeting, once I have the link to the meeting recording from Nicolette, which I will add to the document.

[More ...]
Reply
Show Replies 5 Replies
Re: Rescheduled for 3/28 Re: This Thursday's ELSI meeting
Joseph Yracheta
Thu, 21 Mar 2024 13:31:13 -0500
Hello Debra,

Thanks for this.

*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate
*P'urhépecha & Rar**á**murì*
Executive Director, Native BioData Consortium
South Dakota
605-222-2625

On Thu, Mar 21, 2024 at 1:01 PM Debra Mathews <
[log in to unmask]> wrote:

> Hi all,
>
> I am rescheduling the March meeting for next *Thursday March 28 at 9am
> EDT.* Please note that much of the US has moved to Daylight Savings Time,
> so please double check your local time.
>
> Please also see below/attached for the draft agenda and let me know if you
> have any additions/edits. My plan going forward is

[More ...]
Re: Rescheduled for 3/28 Re: This Thursday's ELSI meeting
Staunton Ciara
Sat, 23 Mar 2024 05:35:07 +0000
Hi Debra,

Could you send a calendar invite to avoid any confusion?

Thanks,

Ciara

From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> On Behalf Of Debra Mathews
Sent: Thursday, 21. March 2024 18:59
To: [log in to unmask]
Subject: Rescheduled for 3/28 Re: This Thursday's ELSI meeting
Importance: High

You don't often get email from [log in to unmask]<mailto:[log in to unmask]>. Learn why this is important<https://aka.ms/LearnAboutSenderIdentification>
Hi all,

[More ...]
Re: Rescheduled for 3/28 Re: This Thursday's ELSI meeting
Debra Mathews
Wed, 27 Mar 2024 13:51:59 +0000
Hi all,

I am not an Outlook user, but just sent a calendar invite for this meeting — please let me know if you have received it!

In the meantime, this is your friendly reminder for tomorrow’s meeting. Agenda and supporting document attached.

Best,
Debra
Re: Rescheduled for 3/28 Re: This Thursday's ELSI meeting
Maui Hudson
Thu, 28 Mar 2024 12:07:57 +0000
Apologies. I got the day wrong and am in transit for Easter.

Maui

Get Outlook for iOS<https://aka.ms/o0ukef>
Re: Rescheduled for 3/28 Re: This Thursday's ELSI meeting
Debra Mathews
Thu, 28 Mar 2024 16:56:38 +0000
Hi all,

Thanks for a productive meeting this morning! Please find attached my meeting minutes, which include the link to the zoom recording (please treat this as confidential). Please feel free to circulate any additions/corrections to my notes. Many thanks!

Our next meeting is April 11/12.

Best,
Debra
This Thursday's ELSI meeting
Hank Greely
Wed, 7 Feb 2024 07:01:42 +0000
Reply
Will start at 6:00 am PST, 2:00 pm in the UK, 10 pm in East Asia and other times in other places.

Nicolette sent out a calendar link that should work. If you don’t have it handy, try this:

https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09 <https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09>

Password: 032450

Agenda:

1. Overall EBP report, including update on the Frontiers paper

2. DSI report

[More ...]
Reply
Show Replies 27 Replies
Re: This Thursday's ELSI meeting
Joseph Yracheta
Wed, 7 Feb 2024 12:18:44 -0600
Thank you! I will be there.

*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate
*P'urhépecha & Rar**á**murì*
Executive Director, Native BioData Consortium
South Dakota
605-222-2625

On Wed, Feb 7, 2024 at 1:02 AM Hank Greely <[log in to unmask]> wrote:

> Will start at 6:00 am PST, 2:00 pm in the UK, 10 pm in East Asia and other
> times in other places.
>
> Nicolette sent out a calendar link that should work. If you don’t have it
> handy, try this:
>
> https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09
>
> Password: 032450
>
> Agenda:
>
> 1. Overall EBP report, including update on the Frontiers paper


[More ...]
Re: This Thursday's ELSI meeting
Richard Durbin
Thu, 8 Feb 2024 12:51:37 +0000
Hello all

With respect to the Data Sharing discussion, here is a link to the current document, after I merged in some proposals and tidied up in other ways.

https://urldefense.com/v3/__https://docs.google.com/document/d/12RFngmKMFGGlcQDtGGkRIITD_gao8GpIPCExszc8FQQ/__;!!IKRxdwAv5BmarQ!bca0YWjK5y_RLHwuT2Od45aV1KcrykAtfNATDBB-opmBfDn-bMvKftesIp-V7kR16vcBQgtLq5JXQA$

Note that people have proposed edits to the EBP Governance Document which are not in our remit, but I have left in for now – we can forward them to the governance committee in due course. None seem urgent to me, but they can consider them when they want to look at the document again.

[More ...]
Re: This Thursday's ELSI meeting
Joseph Yracheta
Thu, 8 Feb 2024 21:02:31 -0600
Hello All,

After today's meeting, I remembered about this program. Many Indigenous
scientists wear several hats in addition to those
ascribed by the scientific method and the West's understanding of what
science means to them.

The ELSI parts of projects usually do not have any other route than to go
through Indigenous scientists as often
Indigenous Academia is spread too thin.

[More ...]
Re: This Thursday's ELSI meeting
Krystal Tsosie
Fri, 9 Feb 2024 03:10:48 +0000
Thanks, Joe! I also want to highlight attention to our IndigiData<https://urldefense.com/v3/__https://indigidata.org/__;!!IKRxdwAv5BmarQ!e4BVk0akP4z_frj-LBqpMAPm-8aAb1xwd1y-JQHFAI3lmHiwRKLAWotucc8IllBKyvQEwKatvu1HKR_aSohUrArv$ > Indigenous data science workshop, co-led by the Native BioData Consortium, ASU, and University of Wisconsin. This workshop targets Indigenous graduate and undergraduate students, and is led by Indigenous researchers in the spaces of IDSov and various data types related to conservation, biodiversity across the taxa, and One Health. 

[More ...]
Re: This Thursday's ELSI meeting
Debra Mathews
Thu, 14 Mar 2024 00:36:41 +0000
Hi all,

Hank and I have had diametrically opposed schedules and so have just this evening managed to have a conversation to do a formal handoff of ELSI Committee Chairing duties, and for me to get a debrief of the February meeting, which I missed due to travel.

As such, and with apologies, I am cancelling the 3/13 (3/14) meeting and will reschedule it for Wednesday the 20th or Thursday the 28th. I will send another email soon with the details (including a draft agenda).

[More ...]
Re: This Thursday's ELSI meeting
Maui Hudson
Thu, 14 Mar 2024 07:50:46 +0000
Thanks Debra,

I’m based in Italy for the next 5 months so the timing works better and I made the last meeting.

Maui

Get Outlook for iOS<https://aka.ms/o0ukef>
Re: This Thursday's ELSI meeting
Debra Mathews
Mon, 8 Apr 2024 17:43:45 +0000
Hi all,

Please see attached for Thursday’s meeting agenda — please let me know if you have any additions/corrections. Please also find attached the current draft of the IP policy, revised by Bob and Andrew in response to comments/questions from Harris and our discussion on the March 28th call.

Best,
Debra
Re: This Thursday's ELSI meeting
Debra Mathews
Thu, 11 Apr 2024 00:10:49 +0000
Hi all,

Just a friendly reminder about our meeting in 25 hours. No changes to the agenda from what I circulated earlier this week.

Best,
Debra
Re: This Thursday's ELSI meeting
Richard Durbin
Thu, 11 Apr 2024 05:22:54 +0000
Dear all

Here is a draft Data Sharing policy, together with some notes/supporting material that were discussed.

Google docs are here with the possibility of adding comments in Suggestion mode – you should all have access.

https://docs.google.com/document/d/158Yb6_YTN12c7tMNn8IlSg68dXMBWxpjMye9kEbAsuw/edit?usp=sharing

https://docs.google.com/document/d/1cAI0kTFl7UAsD6PAZnTSfvzIozBTW7UX1N5DnopProo/edit?usp=sharing

For those on the subgroup who met last week, I restricted rather than enlarged the scope of the “collectors” text in 2(b). I mailed those who contributed to the discussion about this a couple of days ago (Ann, Maui, Debra) but didn’t hear back from any of them – I hope my email got through.

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Re: This Thursday's ELSI meeting
Maui Hudson
Thu, 11 Apr 2024 06:02:31 +0000
Thanks Richard,

Maui
Re: This Thursday's ELSI meeting
Barker, Katharine B.
Thu, 11 Apr 2024 12:44:04 +0000
Hi all,
I'm unfortunately cross-booked this morning and won't be able to make it. Let me know if you need anything from me.
All the best,
Katie Barker
Re: This Thursday's ELSI meeting
Uljana Hesse
Thu, 11 Apr 2024 14:58:06 +0200
I am trying to join, but the room is empty?

On Wed, Feb 7, 2024 at 8:40 AM Hank Greely <[log in to unmask]> wrote:

> Will start at 6:00 am PST, 2:00 pm in the UK, 10 pm in East Asia and other
> times in other places.
>
> Nicolette sent out a calendar link that should work. If you don’t have it
> handy, try this:
>
> https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09
>
> Password: 032450
>
> Agenda:
>
> 1. Overall EBP report, including update on the Frontiers paper
>
> 2. DSI report
>
> 3. Discussion of possible collaboration/participation in

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Re: This Thursday's ELSI meeting
Debra Mathews
Thu, 11 Apr 2024 17:55:46 +0000
Hi all,

Many thanks for a productive meeting today! Please find attached the minutes from the meeting, including a link to the recording and relevant chatlog entries.

Best,
Debra
Re: This Thursday's ELSI meeting
Debra Mathews
Mon, 6 May 2024 14:14:22 +0000
Hi all,

Please find attached the draft agenda for this Thursday’s meeting. Please let me know if you have any revisions. Many thanks!

Best,
Debra
Re: This Thursday's ELSI meeting
Debra Mathews
Wed, 8 May 2024 18:40:15 +0000
Hi all,

I received no updates to the agenda (attached). This is your friendly reminder that we meet tomorrow at 9am EDT. See you soon!

Best,
Debra
Re: This Thursday's ELSI meeting
Debra Mathews
Thu, 6 Jun 2024 23:18:06 +0000
Hi all,

Apologies for not circulating the minutes from the last meeting — please find them attached. Please also find attached the draft agenda for next week’s meeting — please let me know if you have any edits or if you have information that you’d like shared at the meeting in your absence. Many thanks!

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Re: This Thursday's ELSI meeting
Debra Mathews
Thu, 20 Jun 2024 21:06:00 +0000
Hi all,

This is a reminder that we have the rescheduled EBP ELSI June meeting tomorrow (Friday) at 9am EDT. Please find attached:

— Agenda for tomorrow’s meeting
— Minutes for the May meeting
— The current draft of the IP Policy
— A tracked comparison of the May draft with the current draft, so that you can see what changed

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Re: This Thursday's ELSI meeting
Debra Mathews
Wed, 10 Jul 2024 16:12:55 +0000
Hi all,

Just a reminder that we have a meeting tomorrow. Agenda attached — we will discuss… our IP policy!

Best,
Debra
Re: This Thursday's ELSI meeting
Barker, Katharine B.
Wed, 10 Jul 2024 21:58:09 +0000
Apologies, I won't be able to make this one. I look forward to reading the minutes.
Best,
Katie
Re: This Thursday's ELSI meeting
<>
Thu, 11 Jul 2024 08:08:52 -0500
I also have to deliver a talk in a conference this morning, lily

Dra. Lily O. Rodríguez

Directora de Desarrollo Institucional e Investigaciones

Centro de Conservación, Investigación y Manejo de

Áreas Naturales - Cordillera Azul (CIMA-Cordillera Azul)

Av. Ricardo Palma 341, Of. 302

Miraflores, Lima 18. PERU

T: +(51) 969707050

<mailto:[log in to unmask]> [log in to unmask]

<http://www.cima.org.pe/> www.cima.org.pe

De: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> En nombre de Barker, Katharine B.
Enviado el: miércoles, 10 de julio de 2024 04:58 p. m.
Para: [log in to unmask]
Asunto: Re: This Thursday's ELSI meeting

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Re: This Thursday's ELSI meeting
Debra Mathews
Wed, 17 Jul 2024 22:42:36 +0000
Hi all,

Please find attached the minutes and link to the zoom recording from last week’s meeting. Please send any additions/corrections!

Best,
Debra
Re: This Thursday's ELSI meeting
Debra Mathews
Thu, 1 Aug 2024 13:08:03 +0000
Hi all,

Please find attached the draft agenda for next week’s meeting — please let me know if you have any edits or if you have information that you’d like shared at the meeting in your absence. As a reminder, Melissa will be leading this meeting, as I will be on holiday. Many thanks!

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Re: This Thursday's ELSI meeting
Joseph Yracheta
Thu, 8 Aug 2024 08:57:49 -0500
Here is my document.

*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate
*P'urhépecha & Rar**á**murì*
Executive Director, Native BioData Consortium
South Dakota
605-222-2625

On Thu, Aug 1, 2024 at 8:10 AM Debra Mathews <
[log in to unmask]> wrote:

> Hi all,
>
> Please find attached the draft agenda for next week’s meeting — please let
> me know if you have any edits or if you have information that you’d like
> shared at the meeting in your absence. As a reminder, Melissa will be
> leading this meeting, as I will be on holiday. Many thanks!
>
> Best,
> Debra
>
>


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Re: This Thursday's ELSI meeting
Debra Mathews
Tue, 22 Oct 2024 19:58:16 +0000
Hi all,

Please find attached the minutes from the October meeting. I’m including here one critical section from the minutes:

* I tried scheduling meetings month-to-month to enable all members of our committee to attend at least some percentage of the meetings, but this just led to a great deal of confusion – I’m sorry for this!
* Going forward, we will return to the 2nd Thursday of the month at 9am Eastern, and I will schedule individual meetings with committee members for whom this time is prohibitive, at your request.
* I will ask Nicolette to recirculate the calendar

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Re: This Thursday's ELSI meeting
Debra Mathews
Wed, 13 Nov 2024 22:10:34 +0000
Hi all,

I apologize for not circulating the agenda last week — I had a family emergency and have been out much of the last 2+ weeks. In any case, please find attached the agenda for tomorrow’s call and I look forward to seeing you very soon!

Please note that we will have guests from the JEDI Committee joining us toward the end of the call.

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Re: This Thursday's ELSI meeting
Uljana Hesse
Thu, 14 Nov 2024 09:26:25 +0200
Dear Colleagues,
please find attached my thoughts on point 2. Looking forward to meeting you
all.

Kind regards
Uljana

On Thu, Nov 14, 2024 at 12:14 AM Debra Mathews <
[log in to unmask]> wrote:

> Hi all,
>
> I apologize for not circulating the agenda last week — I had a family
> emergency and have been out much of the last 2+ weeks. In any case, please
> find attached the agenda for tomorrow’s call and I look forward to seeing
> you very soon!
>
> Please note that we will have guests from the JEDI Committee joining us
>

[More ...]
Re: This Thursday's ELSI meeting
Richard Durbin
Thu, 14 Nov 2024 08:39:33 +0000
Dear all

I am attaching my thoughts on the current draft of the policy and in particular point 2, on top of Uljana’s so they are in one document.

The statement that EBP sequences have to be free of all encumbrances that was in the first paragraph is not compatible with the EBP Governance document that we have all previously agreed – see below. EBP recognises that there are national and IPLC rights and equitable interests, and there will be tension between these and unrestricted use. EBP supports efforts including the WIPO treaty on Genetic Resources https://www.wipo.int/edocs/mdocs/mdocs/en/gratk_dc/gratk_dc_exsum.pdf and the Cali

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This Thursday's ELSI meeting
Hank Greely
Wed, 7 Feb 2024 06:39:43 +0000
Reply
Will start at 6:00 am PST, 2:00 pm in the UK, 10 pm in East Asia and other times in other places.

Nicolette sent out a calendar link that should work. If you don’t have it handy, try this:

https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09 <https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09>

Password: 032450

Agenda:

1. Overall EBP report, including update on the Frontiers paper

2. DSI report

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Reply
No Replies
RES: TOMORROW'S MEETING - URGENT!
Manuela da Silva
Thu, 21 Dec 2023 13:43:12 +0000
Reply
Dear Hank and All,

I hope everyone is alright!
I would like to justify my absence from the last meeting because I was returning from COP 28 on Climate Change in Dubai.
It was my first Climate COP and I can say that it is impressively much bigger and complex than the Biodiversity COP. There were 108.000 people.
It was a great experience. I even met David Cooper, the Acting Executive Secretary of the CBD, quickly. I believe that the tendency is for the two COPs to be very aligned.
I take this opportunity to wish you all a Merry

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Reply
Show Replies 1 Reply
Re: RES: TOMORROW'S MEETING - URGENT!
Hank Greely
Thu, 21 Dec 2023 16:48:39 +0000
Good excuse! I trust you solved climate change….

Next meeting is scheduled for Thursday, January 11 though I just realized I am going to be in Chile that day (currently +5 hours from California) and I don’t know my schedule. I’ll have to figure that out and then see when/how to hold the meeting. (I’m also, as always, worried about John’s timing as our regular time conflicts with the DSI scientific working group, which you may be on, too.

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Fwd: EBP: regional node application instructions and affiliated project application instructions
Debra Mathews
Mon, 3 Mar 2025 20:53:38 +0000
FYI
Fw: ABS Webinar Series, April 8th and 24th 2024
Barker, Katharine B.
Thu, 28 Mar 2024 13:08:04 +0000
Hello EPB ELSI committee,
FYI on the below and attached.
Best,
Katie Barker
Fwd: 🧬 ELSI Friday Forum | Biogenome Science at an International Scale: Navigating ELSI Challenges
Debra Mathews
Thu, 3 Apr 2025 17:07:28 +0000
FYI — featuring our own Melissa Goldstein! This came out of a proposal to ELSI hub to take up some of the content from the ELSI Committee session at BG24 that had to be cancelled. Please register and circulate broadly!

Best,
Debra
Fwd: TOMORROW: ELSI Friday Forum | Biogenome Science at an International Scale: Navigating ELSI Challenges
Debra Mathews
Thu, 10 Apr 2025 17:26:24 +0000
Friendly reminder about tomorrow’s ELSI Friday Forum!

Nicolette — can you please circulate to the full EBP list?

Best,
Debra

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