This list was created by EDNARMI:LIST_create on Tue Dec 12 15:05:26 MST 2023 This list was created by EDNARMI:LIST_create on Tue Dec 12 15:05:26 MST 2023
[Marca Fiocruz] MANUELA DA SILVA Gerente Geral * General Manager Biobanco da Biodiversidade e Saúde da Fiocruz * Fiocruz Biodiversity and Health Biobank<https://biobanco-bbs.fiocruz.br/pt-br> Vice-Presidência de Pesquisa e Coleções Biológicas * Vice-Presidency of Research and Biological Collections * Fundação Oswaldo Cruz<https://portal.fiocruz.br/> Currículo Lattes<https://lattes.cnpq.br/1048229426231783> * ORCID<https://orcid.org/0000-0001-6073-8929> Tel.: +55 21 2088-3856
De: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> Em nome de Debra Mathews Enviada em: segunda-feira, 7 de julho de 2025 13:04 Para: [log in to unmask] Assunto: VOTE: EBP Data sharing policy Prioridade: Alta
As discussed at the June meeting and reported in the meeting minutes, the draft EBP Data Sharing Policy<https://docs.google.com/document/d/1zPx_-JTxg_mOwxBuTviuL6I-RrHLoFTH/edit#heading=h.gjdgxs> is ready for a vote of this committee.
A vote of YES supports the current draft<https://docs.google.com/document/d/1zPx_-JTxg_mOwxBuTviuL6I-RrHLoFTH/edit#heading=h.gjdgxs> being sent to the Executive Council for review, with the suggestion that it should also go to a number of EBP projects for review, feedback, and potential alignment/harmonization with existing policies.
Melissa M. Goldstein, J.D. Professor | Department of Health Policy and Management Milken Institute School of Public Health The George Washington University o 202-994-4235 [log in to unmask]
"Liberty and duty, freedom and responsibility. *That's the deal*." - John W. Gardner
On Mon, Jul 7, 2025 at 12:04 PM Debra Mathews < [log in to unmask]> wrote:
> Dear colleagues, > > As discussed at the June meeting and reported in the meeting minutes, the > draft EBP Data Sharing Policy > <https://docs.google.com/document/d/1zPx_-JTxg_mOwxBuTviuL6I-RrHLoFTH/edit#heading=h.gjdgxs> is > ready for a vote of this committee. > > A vote of *YES* supports the current draft
I will vote YES and agree with the general terms of this draft. I have however made a suggestion in considering the “blurring” of the localities not only for IPLC but also upon request of authorities of the country of origin; this may happens for instance in case of protected areas and endangered species.
On Jul 8, 2025, at 20:00, Lily Rodriguez Bayona (CIMA-Lima) <[log in to unmask]> wrote:
Dear Debra,
I will vote YES and agree with the general terms of this draft. I have however made a suggestion in considering the “blurring” of the localities not only for IPLC but also upon request of authorities of the country of origin; this may happens for instance in case of protected areas and endangered species.
*CYNTHIA P. PALMES-SALOMA, PhD* *Professor of Molecular Biology and Biotechnology* National Inst. of Molecular Biology and Biotechnology National Science Complex, College of Science University of the Philippines Diliman 1101 Quezon City, PHILIPPINES Tel Direct Line: (+632) 8981 8615 VOIP: (+632) 8981 8500 loc 8623
*Philippine Genome Center * PGC Building, Regidor St., Diliman Campus University of the Philippines Quezon City 1101 PHILIPPINES Tel Direct Line: (+632) 8981 8624 VOIP: (+632) 8981 8500 loc 4701
As the convener of the policy, I note that the text about blurring of location currently says:
Blurring of the location beyond 1km is permitted when needed to protect the conservation status of sensitive species or populations, or if requested by an Indigenous people or local community in order to protect their cultural heritage when sampling in proximity to a site of cultural significance.
Hi there, I am happy with this draft, but would like to extend the embargo period to 3 years, since in some countries it take more time to realize the lab work.
I have been trying to join the meeting, but nobody is there, am I too early?
Kind regards Uljana
On Mon, Jul 7, 2025 at 6:05 PM Debra Mathews < [log in to unmask]> wrote:
The meeting ended at about 9:50am EDT yesterday morning, so we must have just missed you! We finalized and sent forward the data sharing draft, but I expect that we will receive comments back from the EC and so will have it back on our agenda next month.
All — please find attached the minutes from yesterday's meeting, including a link to the recording. I will circulate the revised membership spreadsheet ASAP, but I will not be able to get to it until after next week.
One reason for the 1-year embargo was advice from the lawyers that in order to be exempt from export sanctions, 1 year was probably the maximum.
BCD
[image: ASU SHARES] Robert Cook-Deegan, MD Professor, Arizona State University Barrett & O'Connor Washington Center 1800 I (Eye) Street, NW Washington, DC 20006 [log in to unmask] sfis.asu.edu https://cspo.org/ "I want to see America be what she says she is in the Declaration of Independence and the Constitution."—Pauli Murray I live and work in Accokeek, MD, the ancestral lands of the Piscataway Nation—the former seat of empire for the mid-Atlantic Algonquin confederation. Reconstructing that history
Please find attached the minutes from the May meeting, the agenda for tomorrow’s meeting, and a paper that Bob found that might be of interest. Please also add any edits/comments to the data sharing policy before tomorrow’s meeting: https://docs.google.com/document/d/1zPx_-JTxg_mOwxBuTviuL6I-RrHLoFTH/edit#heading=h.gjdgxs
Dear Colleagues, please find my version and argument attached. Please do extensively comment and, if possible, come to the meeting, as I think that Richard and I have exhaustively discussed our perspectives and we now really need everyone's input.
Kind regards Uljana
On Thu, Dec 5, 2024 at 5:46 PM Debra Mathews < [log in to unmask]> wrote:
> Hi all, > > Please find attached last month’s meeting minutes and next week’s agenda — > please send edits/comments on both, as needed! > > Best, > Debra > > > > ______________________________________________________ > > Debra JH Mathews, PhD, MA > Associate Director for
I am sorry I have been pre-occupied by other things. My position I don’t think is so far from, or incompatible with, Uljana’s.
I am very happy for any nation to make a list of species, or classes of species (such as all plants, or all vertebrates, or all species) for which they do not wish EBP members to generate and deposit reference genomes in INSDC, where these are generated from samples derived from their territory. That is their sovereign right under CBD. Currently New Zealand says no to all species, which is totally OK and we all
Here is my version from last time, which hasn’t changed, but open to discussion as below.
From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Richard Durbin <[log in to unmask]> Date: Thursday, 12 December 2024 at 14:00 To: [log in to unmask] <[log in to unmask]> Subject: Re: EBP ELSI Committee Meeting minutes and agenda Dear all
I am sorry I have been pre-occupied by other things. My position I don’t think is so far from, or incompatible with, Uljana’s.
1. I prefer Uljana’s language: “This implies that this reference sequence information be free of any legal encumbrances, including patents or restrictive use licenses”. My concern with any language that includes “mandate” is that it reads punitively, and we do not really have authority or capacity to uphold it. 2. I like Richard’s suggestion for #2
As promised, please find attached a revised, clean draft of the IP policy, based on Uljana’s and Richard’s most recent drafts and today’s conversation. At the end of the call, we agreed that we would all do a final read of this version, send any critical comments/edits, and that I would then finalize and send forward to the Executive Committee for feedback.
Here is the current draft Data Sharing policy. The only significant changes since the last circulated version are (1) that following Krystal’s comments I have added an explicit reference to LocalContexts, and (2) that I added paragraph 4 about there being a one-year limit on embargos, modelling the language on that in the Governance document.
Nicolette Caperello Executive Director, Earth BioGenome Project Global Futures Laboratory | Walton Center for Planetary Health | Arizona State University
From: Richard Durbin <[log in to unmask]> Date: Thursday, December 12, 2024 at 8:53 AM To: Debra Mathews <[log in to unmask]>, "[log in to unmask]" <[log in to unmask]>, Nicolette Caperello <[log in to unmask]> Subject: Re: EBP ELSI Committee Meeting minutes and agenda
From: Nicolette Caperello <[log in to unmask]> Date: Thursday, 12 December 2024 at 17:08 To: Richard Durbin <[log in to unmask]>, Debra Mathews <[log in to unmask]>, [log in to unmask] <[log in to unmask]> Subject: Re: EBP ELSI Committee Meeting minutes and agenda Dear All,
Nicolette Caperello Executive Director, Earth BioGenome Project Global Futures Laboratory | Walton Center for Planetary Health | Arizona State University
Sorry, I was on pressing business in Bethesda, I will look over the "final" version Dr. Mathews sent over and make any comments....but I am sure you all have handled it well.
Thanks *Joe Yracheta*, MS Pharmaceutics, DrPH Candidate *P'urhépecha & Rar**á**murì* Executive Director, Native BioData Consortium South Dakota 605-222-2625
On Thu, Dec 12, 2024 at 4:20 PM Debra Mathews < [log in to unmask]> wrote:
Deb, this would suggest two revisions, as indicated in the comments.
BCD
[image: ASU SHARES] Robert Cook-Deegan, MD Professor, Arizona State University Barrett & O'Connor Washington Center 1800 I (Eye) Street, NW Washington, DC 20006 [log in to unmask] sfis.asu.edu https://cspo.org/ "I want to see America be what she says she is in the Declaration of Independence and the Constitution."—Pauli Murray I live and work in Accokeek, MD, the ancestral lands of the Piscataway Nation—the former seat of empire for the mid-Atlantic Algonquin confederation. Reconstructing that history is a productive blending of disciplines and cultures,
Manuela’s comment on clause 3 reflects exactly the concern that I had been trying to express. I fully support the first sentence It is the intent of the EBP that submitted sequences have no restrictions on download and as few restrictions on use as [are] consistent with local law and equity. where I believe the interpretation Bob gives is what Debra intended and is the natural meaning in English. The “few” permitted restrictions are those required by law and equity, with nothing further added by the submitter (or anyone else). [To be grammatically nitpicky I
I am likely not able to be at this meeting tomorrow But I will try.
*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate *P'urhépecha & Rar**á**murì* Executive Director, Native BioData Consortium South Dakota 605-222-2625
On Wed, May 7, 2025 at 11:53 AM Debra Mathews < [log in to unmask]> wrote:
> Hi all, > > Please find attached the agenda for tomorrow’s meeting. > > Richard — please circulate the most recent draft of the Data Sharing > document. > > Best, > Debra > > > > ______________________________________________________ > > Debra JH Mathews, PhD, MA > Associate Director for Research and Programs > *BERMAN INSTITUTE*
You should all have access with suggestion/commenter rights. Please feel free to add suggestions/comments and/or email me or the whole group. If you don’t have access then please email me with the Google identity email address you would like me to add.
Please find the attached important document from the Digital Scientific Network. If you have any feedback, please send it in the next 48 hours.
Thanks, Harris
Best,
Nicolette Caperello Executive Director, Earth BioGenome Project Global Futures Laboratory | Walton Center for Planetary Health | Arizona State University
This is basically an argument for augmenting current data structures and not building a new database.
Makes sense.
But a few observations about the text, which are probably too difficult to accommodate, but perhaps worth observing.
It is quite common for such statements to begin with a description of the organization and the members it represents. But it's irrelevant to the substance and could be handled by a footnote. It delays getting to the point to paragraph 3.
Please find attached the minutes from the March meeting, along with the final draft of the IP principles. As noted in the minutes, we agreed on the last call to put this final draft up for a vote. Folks on the call, along with the EBP Executive Committee, are supportive of this draft.
I have only received votes on the IP guidelines from six members of the committee — 51% of the full committee (currently 17 people) is required for approval. Please reply to me ASAP and by end of day Monday at the latest with your vote.
The minutes from the March meeting and the final draft of the IP principles are attached.
The IP principles document has been approved by the committee (10 Yes; 0 No; 7 folks didn’t vote). It will now be forwarded to the Executive Committee for final vote/adoption by the EBP.
I am traveling for work and jet lagged, so failed to add to my below email:
THANK YOU to the Committee for your diligent work on this document and particularly to Bob, Andrew, Uljana, and Richard, for your sincere engagement with and effort toward this long, deliberative process.
Unfortunately I can't attend the meeting today because I have another meeting. I would just like to report that I participated in COP 16.2 (February 25-27), which was the resume of COP 16 that was not finalized in Cali. This meeting took place in Rome, in UN Food and Agriculture Organization Headquarters (FAO), and all the decisions, which were mainly related to financing and monitoring, were approved. The decision on DSI (16/2) that was adopted by CBD COP16 was also approved by COP-MOP Nagoya Protocol. On the same occasion, the Cali Fund, which will receive the
Please find attached the minutes from today’s meeting and the version of the IP policy we intend to send back to Harris and the rest of the Executive Committee. Please review this version. The view of the folks on the call today was that we (after much deliberation over almost three years and with periodic input from the Executive Committee) are comfortable with this document as is. Point 1 of this document accurately represents what we understand the goal of EBP to be. The Executive Committee seems to be pushing back on the main point of the document
Dear Debra, Thanks for your message. I have read the policy document and I am happy with it and also the approach. Kind regards Anita
[Outlook-xxt1tl30.png]<https://noguchi.org.gh/>
[Outlook-rdufhljx.png]<https://www.ug.edu.gh/>
Professor Anita Ghansah Associate Professor of Genetic Epidemiology & Head of Parasitology Department Calestous Juma Science Leadership Fellow Deputy Director, DELGEME_Plus Office: Noguchi Memorial Institute for Medical Research
Telephone: +233(0)271405535
Email: [log in to unmask]<mailto:[log in to unmask]>
University website: www.ug.edu.gh<https://www.ug.edu.gh/>
Thank you very much for the minutes from our last meeting and the new version of the IP policy. I agree with the approach and with the draft. I wish you all a good weekend. Best, Manuela
[Marca Fiocruz] MANUELA DA SILVA
Gerente Geral • General Manager
Biobanco da Biodiversidade e Saúde da Fiocruz • Fiocruz Biodiversity and Health Biobank<https://biobanco-bbs.fiocruz.br/pt-br>
I agree with the approach and the draft. Thank you, all, for your work! Krystal
From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Manuela da Silva <[log in to unmask]> Date: Friday, February 14, 2025 at 3:30 PM To: [log in to unmask] <[log in to unmask]> Subject: Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft Dear Debra,
On Fri, Feb 14, 2025, 9:15 AM Debra Mathews, < [log in to unmask]> wrote:
> Dear colleagues, > > Please find attached the minutes from today’s meeting and the version of > the IP policy we intend to send back to Harris and the rest of the > Executive Committee. *Please review this version.* The view of the folks > on the call today was that we (after much deliberation over almost three > years and with periodic input from the Executive Committee) are comfortable > with this document as is. Point 1
+++ Dr. Irus Braverman (she/her) William J. Magavern Faculty Scholar Professor of Law, Adjunct Professor of Geography, and Research Professor at the Department of Environment & Sustainability University at Buffalo, The State University of New York https://www.irusbraverman.org/
From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Krystal Tsosie <[log in to unmask]> Reply-To: Krystal Tsosie <[log in to unmask]> Date: Friday, February 14, 2025 at 6:34 PM To: "[log in to unmask]" <[log in to unmask]> Subject: Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft
On Feb 15, 2025, at 13:17, Irus Braverman <[log in to unmask]> wrote:
Same here, thank you!
+++ Dr. Irus Braverman (she/her) William J. Magavern Faculty Scholar Professor of Law, Adjunct Professor of Geography, and Research Professor at the Department of Environment & Sustainability University at Buffalo, The State University of New York https://www.irusbraverman.org/
From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Krystal Tsosie <[log in to unmask]> Reply-To: Krystal Tsosie <[log in to unmask]> Date: Friday, February 14, 2025 at 6:34 PM To: "[log in to unmask]" <[log in to unmask]> Subject: Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy
Melissa M. Goldstein, J.D. Professor | Department of Health Policy and Management Milken Institute School of Public Health The George Washington University o 202-994-4235 [log in to unmask]
"Liberty and duty, freedom and responsibility. *That's the deal*." - John W. Gardner
On Sat, Feb 15, 2025 at 2:17 PM Irus Braverman < [log in to unmask]> wrote:
> Same here, thank you! > > > > +++ > > Dr. Irus Braverman (she/her) > > William J. Magavern Faculty Scholar > Professor of Law, Adjunct Professor of Geography, and Research Professor > at the Department of Environment & Sustainability > > University at Buffalo,
Thank you *Joe Yracheta*, MS Pharmaceutics, DrPH Candidate *P'urhépecha & Rar**á**murì* Executive Director, Native BioData Consortium South Dakota 605-222-2625
On Sat, Feb 15, 2025 at 1:36 PM Melissa Goldstein < [log in to unmask]> wrote:
> agreed. thank you! > > Melissa M. Goldstein, J.D. > Professor | Department of Health Policy and Management > Milken Institute School of Public Health > The George Washington University > o 202-994-4235 > [log in to unmask] > > "Liberty and duty, freedom and responsibility. *That's the deal*." - John > W. Gardner > > > On Sat, Feb 15,
Hi there, I agree with the draft and the approach.
Kind regards Uljana Hesse
On Sun, Feb 16, 2025 at 5:03 AM Joseph Yracheta <[log in to unmask]> wrote:
> Hello Everyone > > I agree with the approach and the draft. > > Thank you > *Joe Yracheta*, MS Pharmaceutics, DrPH Candidate > *P'urhépecha & Rar**á**murì* > Executive Director, Native BioData Consortium > South Dakota > 605-222-2625 > > > On Sat, Feb 15, 2025 at 1:36 PM Melissa Goldstein < > [log in to unmask]> wrote: > >> agreed. thank you! >> >> Melissa M. Goldstein, J.D. >> Professor | Department of Health Policy and Management
Just to let people know that I haven’t completely disappeared, I have been in touch independently with Debra and am also fine with proceeding this way.
Richard
From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Debra Mathews <[log in to unmask]> Date: Monday, 17 February 2025 at 08:05 To: [log in to unmask] <[log in to unmask]> Subject: Re: TIME SENSITIVE REQUEST Re: 2/14 meeting agenda + IP policy draft Thank you, all! I’ve included the Committee on my email to Harris.
Apologies for not having gotten this to you last week. Please find attached our agenda for tomorrow, along with the most recent draft of the IP Policy, with the couple of comments that we received from the Executive Committee that we need to discuss.
On Thu, 13 Feb 2025, 7:19 am Debra Mathews, < [log in to unmask]> wrote:
> Dear colleagues, > > Apologies for not having gotten this to you last week. Please find > attached our agenda for tomorrow, along with the most recent draft of the > IP Policy, with the couple of comments that we received from the Executive > Committee that we need to discuss. > > Best, > Debra > > > > ______________________________________________________ > > Debra JH Mathews, PhD, MA > Associate Director for Research and Programs > *BERMAN INSTITUTE* OF BIOETHICS > Professor, Genetic
From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Debra Mathews <[log in to unmask]> Date: Wednesday, 12 February 2025 at 23:19 To: [log in to unmask] <[log in to unmask]> Subject: 2/14 meeting agenda + IP policy draft Dear colleagues,
Apologies for not having gotten this to you last week. Please find attached our agenda for tomorrow, along with the most recent draft of the IP Policy, with the couple of comments that we received from the Executive Committee that we need to discuss.
Dear Debra, I cant make it but I will read and send comments, apologies, lily
Dra. Lily O. Rodríguez
Directora de Desarrollo Institucional e Investigaciones
Centro de Conservación, Investigación y Manejo de
Áreas Naturales - Cordillera Azul (CIMA-Cordillera Azul)
Av. Ricardo Palma 341, Of. 302
Miraflores, Lima 18. PERU
T: +(51) 969707050
<mailto:[log in to unmask]> [log in to unmask]
www.cima.org.pe <http://www.cima.org.pe/>
De: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> En nombre de Debra Mathews Enviado el: miércoles, 12 de febrero de 2025 06:14 p. m. Para: [log in to unmask] Asunto: 2/14 meeting agenda + IP policy draft
The time has come for me to depart from the wonderful ELSI Committee and devote my time to other academic activities. I have a number of manuscripts and books as well a local conservation efforts that I need to focus on for the next few years. I will always be available for further consultation on issues, such as DSI, and will join discussions when appropriate. Our Chair Debra is aware of my availability.
Forwarding on a new document by the AfricaBP ELSI Subcommittee, the "Practical Guide to Accessing and Sharing Biological Diversity Material and Data: A Research Stage-Based Approach." Rob Waterhouse (of our Governance Comm) gave me the heads-up and says it appears to be more of a checklist than a guide. I haven't had the chance to review it yet.
With apologies, I must miss tomorrow’s meeting. My family and I are dealing with some unfortunate news.
Krystal
From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Debra Mathews <[log in to unmask]> Date: Monday, January 6, 2025 at 1:29 PM To: [log in to unmask] <[log in to unmask]> Subject: EBP ELSI Committee Meeting Agenda Hi all,
Apologies for the delay — please find attached the agenda for Thursday’s/Friday’s meeting.
Melissa M. Goldstein, J.D. Professor | Department of Health Policy and Management Milken Institute School of Public Health The George Washington University o 202-994-4235 [log in to unmask]
"Liberty and duty, freedom and responsibility. *That's the deal*." - John W. Gardner
On Wed, Jan 8, 2025 at 9:18 AM Melissa Goldstein <[log in to unmask]> wrote:
> Hi all, > > Forwarding on a new document by the AfricaBP ELSI Subcommittee, the > "Practical Guide to Accessing and Sharing Biological Diversity Material and > Data: A Research Stage-Based Approach." Rob Waterhouse (of our Governance > Comm) gave me the heads-up and
Dear Colleagues, Happy New Year everyone!!! Just a heads up: I will try to come, but may not make it.
Kind regards Uljana
On Thu, Jan 9, 2025 at 3:02 AM Melissa Goldstein < [log in to unmask]> wrote:
> Sorry for forgetting the link! > > https://osf.io/5zthf > > > Melissa M. Goldstein, J.D. > Professor | Department of Health Policy and Management > Milken Institute School of Public Health > The George Washington University > o 202-994-4235 > [log in to unmask] > > "Liberty and duty, freedom and responsibility. *That's the deal*." - John > W. Gardner > > > On Wed, Jan 8,
I am sorry, I am in a meeting elsewhere that I can’t get out of. Richard
From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> on behalf of Uljana Hesse <[log in to unmask]> Date: Thursday, 9 January 2025 at 08:50 To: [log in to unmask] <[log in to unmask]> Subject: Re: EBP ELSI Committee Meeting Agenda Dear Colleagues, Happy New Year everyone!!! Just a heads up: I will try to come, but may not make it.
Please find attached the minutes from today’s meeting (including the link to the zoom recording) and the track-changes version of the IP policy, based on today’s discussion.
Happy New Year! Please find attached the draft EBP IP policy from the ELSI Committee, for review and feedback from the Executive Committee. We look forward to hearing your collective thoughts and to moving this policy toward finalization.
Happy New Year to you and the ELSI Committee! Thank you for the draft of the IP Policy. We will discuss it at this week's Executive Council meeting.
Best,
Harris
From: Debra Mathews <[log in to unmask]> Sent: Sunday, January 5, 2025 3:35 PM To: Harris Lewin <[log in to unmask]> Cc: [log in to unmask] Subject: EBP IP Policy for feedback
Dear Harris,
Happy New Year! Please find attached the draft EBP IP policy from the ELSI Committee, for review and feedback from the Executive Committee. We look forward to hearing your collective thoughts and to moving this policy toward finalization.
I’m writing to follow up on my meeting with the Executive Committee in January regarding the EBP IP Policy drafted by the ELSI Committee. The ELSI Committee met last week and discussed the feedback from the EC and are submitting now our proposed IP Policy (attached). We have made a change to the opening paragraph that we think addresses Mark Blaxter’s concern, but would like his feedback on this point.
Thank you and the ELSI Committee for the revised document. The EC will discuss the document at our next meeting on February 26. I will get back to you with the EC’s comments after the meeting.
Best,
Harris
From: Debra Mathews <[log in to unmask]> Sent: Monday, February 17, 2025 8:03 AM To: Harris Lewin <[log in to unmask]> Cc: [log in to unmask] Subject: Re: EBP IP Policy for feedback
I agree that it is important to require that any legal restrictions on use that do arise from legislation or quite should be explicitly stated.
I think we should make it clearer that “local law” refers to the law of the country/location from which the sample giving rise to the sequence was taken, rather than the location of the sequencer/submitter.
Happy New Year! I hope that you had enjoyable holidays and a bit of a break. Please find attached both a track-changes and clean version of the draft that I plan to send forward to the Executive Committee for feedback by the end of the weekend, barring additional discussion.
Unfortunately, I am not available at this time. It is a pity because I have some questions. I may not have understood the discussion during the last meeting, I am sorry for this. But I hope you can answer my questions in the attached document.
Thank you for your message and the documents. Nest week I will be in vacation, so I won´t participate of the meeting.
Regarding DSI, I can bring here some information.
Yesterday, June 12th, we had the sixth meeting of the Informal Advisory Group on Benefit-sharing from the Use of DSI, about trigger points for benefit sharing contribution.
With apologies for the late notice and due to a number of folks not being available for tomorrow, and the importance of finalizing the IP policy (most recent draft circulated by Bob Cook-Deegan on Monday and also attached here), we have decided to reschedule tomorrow’s meeting.
The new June meeting time will be Friday June 21st, 9-10am EDT. I received no edits to the agenda, so the attached is still current.
Thanks fo the info, Debra. Noted on the change of meeting sched.
Cheers, Cynthia
On Thu, Jun 13, 2024, 5:50 AM Debra Mathews, < [log in to unmask]> wrote:
> Hi all, > > With apologies for the late notice and due to a number of folks not being > available for tomorrow, and the importance of finalizing the IP policy > (most recent draft circulated by Bob Cook-Deegan on Monday and also > attached here), we have decided to *reschedule tomorrow’s meeting*. > > The *new June meeting time will be Friday June 21st, 9-10am EDT.* I > received no edits to
Upcoming Meetings*, all at 9am EDT: April 11/12 May 9/10 June 13/14 July 11/12 August 8/9 (Debra unavailable this week) [in July/August, we will revisit scheduling for the last quarter of the year]
*all meetings use the same zoom information (https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09; Code: 032450)
I am rescheduling the March meeting for next Thursday March 28 at 9am EDT. Please note that much of the US has moved to Daylight Savings Time, so please double check your local time.
Please also see below/attached for the draft agenda and let me know if you have any additions/edits. My plan going forward is to take notes on the agenda in the Word doc and then circulate the agenda/notes document after the meeting, once I have the link to the meeting recording from Nicolette, which I will add to the document.
*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate *P'urhépecha & Rar**á**murì* Executive Director, Native BioData Consortium South Dakota 605-222-2625
On Thu, Mar 21, 2024 at 1:01 PM Debra Mathews < [log in to unmask]> wrote:
> Hi all, > > I am rescheduling the March meeting for next *Thursday March 28 at 9am > EDT.* Please note that much of the US has moved to Daylight Savings Time, > so please double check your local time. > > Please also see below/attached for the draft agenda and let me know if you > have any additions/edits. My plan going forward is
Could you send a calendar invite to avoid any confusion?
Thanks,
Ciara
From: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> On Behalf Of Debra Mathews Sent: Thursday, 21. March 2024 18:59 To: [log in to unmask] Subject: Rescheduled for 3/28 Re: This Thursday's ELSI meeting Importance: High
You don't often get email from [log in to unmask]<mailto:[log in to unmask]>. Learn why this is important<https://aka.ms/LearnAboutSenderIdentification> Hi all,
Thanks for a productive meeting this morning! Please find attached my meeting minutes, which include the link to the zoom recording (please treat this as confidential). Please feel free to circulate any additions/corrections to my notes. Many thanks!
*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate *P'urhépecha & Rar**á**murì* Executive Director, Native BioData Consortium South Dakota 605-222-2625
On Wed, Feb 7, 2024 at 1:02 AM Hank Greely <[log in to unmask]> wrote:
> Will start at 6:00 am PST, 2:00 pm in the UK, 10 pm in East Asia and other > times in other places. > > Nicolette sent out a calendar link that should work. If you don’t have it > handy, try this: > > https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09 > > Password: 032450 > > Agenda: > > 1. Overall EBP report, including update on the Frontiers paper
Note that people have proposed edits to the EBP Governance Document which are not in our remit, but I have left in for now – we can forward them to the governance committee in due course. None seem urgent to me, but they can consider them when they want to look at the document again.
After today's meeting, I remembered about this program. Many Indigenous scientists wear several hats in addition to those ascribed by the scientific method and the West's understanding of what science means to them.
The ELSI parts of projects usually do not have any other route than to go through Indigenous scientists as often Indigenous Academia is spread too thin.
Thanks, Joe! I also want to highlight attention to our IndigiData<https://urldefense.com/v3/__https://indigidata.org/__;!!IKRxdwAv5BmarQ!e4BVk0akP4z_frj-LBqpMAPm-8aAb1xwd1y-JQHFAI3lmHiwRKLAWotucc8IllBKyvQEwKatvu1HKR_aSohUrArv$ > Indigenous data science workshop, co-led by the Native BioData Consortium, ASU, and University of Wisconsin. This workshop targets Indigenous graduate and undergraduate students, and is led by Indigenous researchers in the spaces of IDSov and various data types related to conservation, biodiversity across the taxa, and One Health.
Hank and I have had diametrically opposed schedules and so have just this evening managed to have a conversation to do a formal handoff of ELSI Committee Chairing duties, and for me to get a debrief of the February meeting, which I missed due to travel.
As such, and with apologies, I am cancelling the 3/13 (3/14) meeting and will reschedule it for Wednesday the 20th or Thursday the 28th. I will send another email soon with the details (including a draft agenda).
Please see attached for Thursday’s meeting agenda — please let me know if you have any additions/corrections. Please also find attached the current draft of the IP policy, revised by Bob and Andrew in response to comments/questions from Harris and our discussion on the March 28th call.
For those on the subgroup who met last week, I restricted rather than enlarged the scope of the “collectors” text in 2(b). I mailed those who contributed to the discussion about this a couple of days ago (Ann, Maui, Debra) but didn’t hear back from any of them – I hope my email got through.
On Wed, Feb 7, 2024 at 8:40 AM Hank Greely <[log in to unmask]> wrote:
> Will start at 6:00 am PST, 2:00 pm in the UK, 10 pm in East Asia and other > times in other places. > > Nicolette sent out a calendar link that should work. If you don’t have it > handy, try this: > > https://asu.zoom.us/j/88679509608?pwd=WWtHSSt4MFZuRitDUlBSeUVYUGJpdz09 > > Password: 032450 > > Agenda: > > 1. Overall EBP report, including update on the Frontiers paper > > 2. DSI report > > 3. Discussion of possible collaboration/participation in
Many thanks for a productive meeting today! Please find attached the minutes from the meeting, including a link to the recording and relevant chatlog entries.
Apologies for not circulating the minutes from the last meeting — please find them attached. Please also find attached the draft agenda for next week’s meeting — please let me know if you have any edits or if you have information that you’d like shared at the meeting in your absence. Many thanks!
This is a reminder that we have the rescheduled EBP ELSI June meeting tomorrow (Friday) at 9am EDT. Please find attached:
— Agenda for tomorrow’s meeting — Minutes for the May meeting — The current draft of the IP Policy — A tracked comparison of the May draft with the current draft, so that you can see what changed
I also have to deliver a talk in a conference this morning, lily
Dra. Lily O. Rodríguez
Directora de Desarrollo Institucional e Investigaciones
Centro de Conservación, Investigación y Manejo de
Áreas Naturales - Cordillera Azul (CIMA-Cordillera Azul)
Av. Ricardo Palma 341, Of. 302
Miraflores, Lima 18. PERU
T: +(51) 969707050
<mailto:[log in to unmask]> [log in to unmask]
<http://www.cima.org.pe/> www.cima.org.pe
De: ebpelsi - The Earth BioGenome Project ELSI Committee <[log in to unmask]> En nombre de Barker, Katharine B. Enviado el: miércoles, 10 de julio de 2024 04:58 p. m. Para: [log in to unmask] Asunto: Re: This Thursday's ELSI meeting
Please find attached the draft agenda for next week’s meeting — please let me know if you have any edits or if you have information that you’d like shared at the meeting in your absence. As a reminder, Melissa will be leading this meeting, as I will be on holiday. Many thanks!
*Joe Yracheta*, MS Pharmaceutics, DrPH Candidate *P'urhépecha & Rar**á**murì* Executive Director, Native BioData Consortium South Dakota 605-222-2625
On Thu, Aug 1, 2024 at 8:10 AM Debra Mathews < [log in to unmask]> wrote:
> Hi all, > > Please find attached the draft agenda for next week’s meeting — please let > me know if you have any edits or if you have information that you’d like > shared at the meeting in your absence. As a reminder, Melissa will be > leading this meeting, as I will be on holiday. Many thanks! > > Best, > Debra > >
Please find attached the minutes from the October meeting. I’m including here one critical section from the minutes:
* I tried scheduling meetings month-to-month to enable all members of our committee to attend at least some percentage of the meetings, but this just led to a great deal of confusion – I’m sorry for this! * Going forward, we will return to the 2nd Thursday of the month at 9am Eastern, and I will schedule individual meetings with committee members for whom this time is prohibitive, at your request. * I will ask Nicolette to recirculate the calendar
I apologize for not circulating the agenda last week — I had a family emergency and have been out much of the last 2+ weeks. In any case, please find attached the agenda for tomorrow’s call and I look forward to seeing you very soon!
Please note that we will have guests from the JEDI Committee joining us toward the end of the call.
Dear Colleagues, please find attached my thoughts on point 2. Looking forward to meeting you all.
Kind regards Uljana
On Thu, Nov 14, 2024 at 12:14 AM Debra Mathews < [log in to unmask]> wrote:
> Hi all, > > I apologize for not circulating the agenda last week — I had a family > emergency and have been out much of the last 2+ weeks. In any case, please > find attached the agenda for tomorrow’s call and I look forward to seeing > you very soon! > > Please note that we will have guests from the JEDI Committee joining us >
I am attaching my thoughts on the current draft of the policy and in particular point 2, on top of Uljana’s so they are in one document.
The statement that EBP sequences have to be free of all encumbrances that was in the first paragraph is not compatible with the EBP Governance document that we have all previously agreed – see below. EBP recognises that there are national and IPLC rights and equitable interests, and there will be tension between these and unrestricted use. EBP supports efforts including the WIPO treaty on Genetic Resources https://www.wipo.int/edocs/mdocs/mdocs/en/gratk_dc/gratk_dc_exsum.pdf and the Cali
I hope everyone is alright! I would like to justify my absence from the last meeting because I was returning from COP 28 on Climate Change in Dubai. It was my first Climate COP and I can say that it is impressively much bigger and complex than the Biodiversity COP. There were 108.000 people. It was a great experience. I even met David Cooper, the Acting Executive Secretary of the CBD, quickly. I believe that the tendency is for the two COPs to be very aligned. I take this opportunity to wish you all a Merry
Next meeting is scheduled for Thursday, January 11 though I just realized I am going to be in Chile that day (currently +5 hours from California) and I don’t know my schedule. I’ll have to figure that out and then see when/how to hold the meeting. (I’m also, as always, worried about John’s timing as our regular time conflicts with the DSI scientific working group, which you may be on, too.
FYI — featuring our own Melissa Goldstein! This came out of a proposal to ELSI hub to take up some of the content from the ELSI Committee session at BG24 that had to be cancelled. Please register and circulate broadly!